We were finally able to get Addyson signed up for the Medicaid A&D Waiver, which enables us to received skilled nursing respite care for Addy. This means we'll get a set number of hours per week in which a skilled nurse will be here at our house to care for Addyson, giving Nick and I a bit of respite. We can use this time to get chores done, run errands, sleep, basically, so whatever things we need to get done. This is wonderful, especially in the winter (cold/flu season) when we don't like to take Addy out to run errands. I'm hoping to use the time to visit the library and work on some of my personal goals, unrelated to Addy. I think the extra socializati
We were also able to get approval for Medicaid Disability, and since she qualifies for the A&D Waiver (above), the monthly spend down is $0. This means that we are able to have excellent health insurance for Addyson, which she desperately needs, for no out of pocket monthly fees or co-pays. Honestly, I had been working on this since May and finally got all approved for the start of December.
Because of the way Addy's body is fed, her digestive system needs some assistance, so she continues her daily dose of Miralax. (I'm sure as she gets older she'll hate that I share this info with the world!!!)
She weighed 24 1/2 lbs at her appointment last week, and she's still a shorty, but her height to weight is proportiona
We had a little incident this weekend, and Addy fell out of her crib. She's OK, but it really scared me. So, we've converted her crib into a toddler day bed. It's low enough to the ground that if she rolls out of bed, it's not a big deal, and I've put a long pillow on the floor to help that too. So, she's in a BIG GIRL BED!!! I have to really make sure she understands that she can't just get up and walk out of bed, since she's hooked up to her night time feeding pump all night, so I'm sure it will take some getting used to. We've had 2 nights in the new bed, and she's shown a lot of promise!
And of course, now that she's in a Big Girl Bed, she's really shocked us and has been asking to sit on the Big Girl Potty! We've been talking about it and asking her to sit on it for months now, but after the first night in the Big Girl Bed, she asked to sit on the Potty! She sat a few times during that day, and we were so proud of her. Today, she actually had success on the potty, so it's been a HUGE weekend for Addy!!! We couldn't be more proud of her!
She's talking up a storm, and although most people don't have a clue what she's saying, it's mainly because she talks so fast. GUILTY, both Nick and I are so guilty of that. We have to watch ourselves and encourage her to slow down so we can understand her. Like most 2 year olds, a lot of understandi
The therapy that she recieves (Speech, Occupationa
Mark your calendars, the March of Dimes walk falls on Addy's birthday this year, Sunday, April 25th. We will be walking as Team Addyson again and collecting donations as well. Please let me know if you are interested in being a part of our team or making a donation! Here's the link to our Team Website. You can sign up to be a part of the team HERE or make a donation HERE. It's a great way to celebrate Addy's life and help others!
Ok, now I'm going to work on getting some new pictures up here in the next week or so, so stay tuned!!!